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Headline : We Have What? hATTR Amyloidosis: My Family’s Journey

Read more from the original article on here at blackhealthmatters.com.




Tags : #hattr #amyloidosis #familys #journey


No. of Paragraph 27

Every so often an opinion poll goes around on social media asking if folks would want to know in advance if they carry genetic material that could cause a fatal disease. Most people say no. Some of these diseases are terrifying, and advanced knowledge about something for which there is no cure? No thanks.

I’ve been a health reporter for years and know full well that early detection is crucial. But I’ve never taken any of these polls. Honestly, I’ve never felt the need.

That stance was called into question when my mom contracted pneumonia.

While in the hospital being treated, her medical team noticed fluid buildup caused by a leaking valve. A cardiac catheterization showed no blockage in her arteries (“she has the arteries of a 17-year-old,” one cardiologist said in amazement). A trans-esophageal echocardiogram was equally uninformative. Yes, her mitral valve was leaking. No, they didn’t know why.

Read more from the original article on here at blackhealthmatters.com.


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